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Parenting Special Needs

From the desk of a parent of a 16-year-old, special education student, diagnosed with cerebral palsy, developmental delay and a physical disability. This blog is for parents and caregivers of children with special needs, as well as educators and health professionals. Here you will find events in the area, updates to laws, as well as opportunities, with my own personal stories thrown in for heartbreak and encouragement. Have a question? Just ask.

Medicaid Waiver Assistance for Parents

 

Medicaid Waiver Assistance for Parents

 

“from Beginning the process to appealing”

 Saturday, February 27th at 9:00 a.m.

RSVP to Robin at 757.218.6507 or robynvitto@yahoo.com

Deadline to RSVP: February 13th

PARENTS ONLY PLEASE

Please bring your child’s Medicaid Application (and any other applicable information) to this meeting on Saturday. The application will be a walk through as well as going through how the evaluation will be conducted. If you are appealing we will have mentors available to help with that information too.

 

NOTE: Financial consideration is not a factor.

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Make sure your Medicare equipment & supplies get paid for

Do you have a prescription for durable medical equipment? Then be sure your physician has recently enrolled in the Medicare internet based PECOS system or Medicare will not pay for the items and instead you could be held financially liable.  Learn more about this and other policies that impact your life at www.spinalcordadvocates.org.

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Hearing Loss Forum & Resource Exhibit

HEARING LOSS FORUM & RESOURCE EXHIBIT

For Parents of Children who are Deaf or Hard of Hearing

Saturday, March 13, 2010

9am – 3pm

FREE Admission!!!

Children’s Hospital of the King’s Daughters

Brickhouse Auditorium

Resources      Workshops      Prizes

For more information or to RSVP, please contact Laika Aguinaldo, MSW

(757) 668-7647 / Laika.Aguinaldo@chkd.org

Children’s Hospital of The King’s Daughters / Hands & Voices / Guide by Your Side /

Care Connection for Children 

Sandy Hermann, Community Resource Coordinator     sandra.hermann@chkd.org

 

 

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Spring Health Fair

On February 20, 2010, Concerned Citizens for Human Excellence and Sister to Sister will be having their Spring Health Fair. This will be held at the Moton Community House, 2101 Jefferson Avenue , Newport News , VA 23607 , from 9 a.m. – 1 p.m.

Preceding the health fair will be a healthy breakfast at the Boys and Girls Club of Hampton Roads, 629 Hampton Avenue , Newport News , VA 23607 . The guest speaker will be a nutritionist from the local health department.

Our primary goal is to educate the East End community on preventative health care.

Listed below are the following areas that we need volunteers to perform various workshops and or screenings in their respective fields.

Diabetes prevention                    

Drug prevention

Breast Cancer prevention

Colon Cancer prevention

Prostate Cancer prevention

Violence prevention

Child Safety

HIV/Aids Testing

Alcohol and Drug Abuse

Mental Health

Dental Screening

Eye Screening

High Blood Pressure Screening

Cholesterol Screening

Foot Care

Skin Care

STD prevention

If you are interested in participating please contact Hakima Muhammad via e-mail hakima48@hotmail.com or sisteriisister@live.com by phone (757) 715-3050.

Concerned Citizens for Human Excellence, Miss Shelley Trautman, Volunteers Services Supervisor, Commonwealth of Virginia - State Health Department, Peninsula Health District, 416 J. Clyde Morris Blvd., Newport News, VA 23601,Phone: 757-594-8933, Fax 757-594-7401

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Ideas & Strategies for Teachers and Parents

 

Tuesday, February 9, 2010

Murray Center, 455 Brambleton Avenue, Norfolk, VA 23510

Middle School & High School, Teachers & Parents Training, 8:30 – 11:30

High School, Teachers & Parents Training, 12:30 – 3:30

Kathy Morris is part of the Visually Speaking team which is committed to providing quality staff development and support to educators and parents so that students with autism receive a meaningful and appropriate education.

Ms. Morris presented at the NPS literacy conference last summer on working with students with autism.

Goals

Students with autism will have a communication system that is effective across environments, contexts and persons.
 
Students with autism will have opportunities to participate in the general education setting to the maximum extent appropriate.
 
Students with autism will be educated with respect to their needs, strengths and interests.
 
Students with autism will have visual supports that extend into home and work settings.
 
Students with autism will develop cognitive and behavioral skills that enable success in post-school settings.

ADVISORY: Users are solely responsible for opinions they post here and for following agreed-upon rules of civility. Comments do not reflect the views of The Virginian-Pilot or its Web sites. Comments are automatically checked for inappropriate language, but readers might find some comments offensive or inaccurate. If you believe a comment violates our rules, click the "Report Violation" link below the comment.

Medicaid Waiver Cuts

Attached is the cuts in the budget that are proposed for Medicaid Waivers. If this happens the elderly and disabled consumers in Virginia will be at risk of being institutionalize or placed in a nursing home. If you can take a few minutes to email or call the Legislators, Senators and the Governor it would be much appreciated.

 

Food for thought

 

It costs the state $68,000 to have someone in a nursing home and approx $23,000 to provide consumer based services in their home thru the EDCD waiver.

If they have a wait list for the Elderly and Disable Consumer Direction Waiver - no one will be able to move out of a nursing home and live independently without paying for services themselves.

The current pay rate for Personal Care Attendants is $8.65 and they want to cut that by 5%

 

We all know that this is a tough budget year but to cut the services of the most vulnerable consumers is not the way to go.

 

Have a great day.

 

Linda Johnson, Information and Referral Coordinator, 6300 E Virginia Beach Blvd, Norfolk VA 23502, Phone: 757-461-8007

 

Action Needed!
Major Cuts Proposed to Services for Virginians with Disabilities
The Virginia General Assembly is considering major cuts to Medicaid services that will -
Reduce the number of hours of respite from 720 hours to 240 hours a year
Reduce Medicaid Waiver provider rates by 5%
Increase waiting lists for the DD and ID/MR Waivers
Stop new enrollment into the DD, EDCD, and ID/MR Waivers
Eliminate thousands of jobs, including personal care attendants/aides and respite staff
Eliminate podiatry services and adult optometry services
Reduce therapy services
Contact your State Senator and Delegate, the Governor, and leaders of the legislative money committees. Let them know how these cuts will impact you.
Contact information for your Senator and Delegate is at: http://conview.state.va.us/whosmy.nsf/main?openform
Also call or email the following:
Senator Colgan, Chair of the Senate Finance Committee
 
Senator Houck, Chair of the Senate Finance Health and Human Resources Subcommittee
 
Delegate Putney, Chair of the House Appropriations Committee
 
Delegate Morgan, Chair of the House Appropriations Health and Human Resources Subcommittee
 
Governor McDonnell
 
 
Virginia Association of Centers for Independent Living

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VAPCA Rallies in Richmond to Save Home Care, Protect Tax Payers

Last week, over 100 Personal Care Assistants, older adults, people with disabilities and community allies travelled from across Virginia to to rally at the state capitol in Richmond in support of quality, cost-effective Home and Community-Based Services.
 
Together, they united in the Virginia Association of Personal Care Assistants and spoke out against proposed cuts to home care programs; cuts which would cost taxpayers more money and which would hurt families.
 
                   To see photos from the rally, visit:
 
 
Many thanks to all our supportive community allies, but we want to give special thanks to the Virginia Interfaith Center, Virginia Organizing Project, First Unitarian Universalist Church of Richmond, Voice for Gap Kids and Virginia New Majority for lending a hand with our “Quality Home Care Dinner” and our lobby day!
To learn more about our efforts to stop these reckless cuts to our invaluable, cost-effective home care programs, visit: www.virginiapca.org. And make sure to visit our Newsroom (http://virginiapca.org/newsroom/) to see coverage of Personal Care Assistants and our allies speaking out at Budget Hearings across the Commonwealth.
 
 
We took to the Capitol and our voices were heard! But our work isn't over yet.
 
Our elected officials are still debating the proposed budget. They are even debating whether or not to make MORE cuts to Home and Community-Based Services, including home care workers’ pay, hours and the care our loved ones receive.
 
Take action today! Contact your legislators and tell them:
 
Restore the 5% pay cut to Personal Care Assistants!
Restore the Respite Hours!
Restore the Waiver Slots!
 
To learn who your legislators are, and how to contact them, please visit: http://conview.state.va.us/whosmy.nsf/main?openform

ADVISORY: Users are solely responsible for opinions they post here and for following agreed-upon rules of civility. Comments do not reflect the views of The Virginian-Pilot or its Web sites. Comments are automatically checked for inappropriate language, but readers might find some comments offensive or inaccurate. If you believe a comment violates our rules, click the "Report Violation" link below the comment.

Action Needed! Major Cuts Proposed to Services for Virginians with Disabilities!

Thursday, February 4 advocacy organizations are encouraging people to call legislators about State proposed budget cuts. Various organizations have developed alerts for this purpose. Please share this information with others.

Action Needed!

Major Cuts Proposed to Services for Virginians with Disabilities The Virginia General Assembly is considering major cuts to Medicaid services that will -

Reduce the number of hours of respite from 720 hours to 240 hours a year

Reduce Medicaid Waiver provider rates by 5%

Increase waiting lists for the DD and ID/MR Waivers

Stop new enrollment into the DD, EDCD, and ID/MR Waivers

Eliminate thousands of jobs, including personal care attendants/aides and respite staff

Eliminate podiatry services and adult optometry services

Reduce therapy services

Contact your State Senator and Delegate, the Governor, and leaders of the legislative money committees. Let them know how these cuts will impact you.

Contact information for your Senator and Delegate is at: http://conview.state.va.us/whosmy.nsf/main?openform <http://conview.state.va.us/whosmy.nsf/main?openform>

Also call or email the following:

Senator Colgan, Chair of the Senate Finance Committee

district29@senate.virginia.gov <mailto:district29@senate.virginia.gov> , 804-698-7529

Senator Houck, Chair of the Senate Finance Health and Human Resources Subcommittee

district17@senate.virginia.gov <mailto:district17@senate.virginia.gov> , 804-698-7517

Delegate Putney, Chair of the House Appropriations Committee

DelLPutney@house.virginia.gov <mailto:DelLPutney@house.virginia.gov> , 804-698-1019

Delegate Morgan, Chair of the House Appropriations Health and Human Resources Subcommittee

DelHMorgan@house.virginia.gov <mailto:DelHMorgan@house.virginia.gov> , 804-698-1098

Governor McDonnell

www.governor.virginia.gov/TheAdministration/contactGovernor.cfm <http://www.governor.virginia.gov/TheAdministration/contactGovernor.cfm> , 804-786-2211

ADVISORY: Users are solely responsible for opinions they post here and for following agreed-upon rules of civility. Comments do not reflect the views of The Virginian-Pilot or its Web sites. Comments are automatically checked for inappropriate language, but readers might find some comments offensive or inaccurate. If you believe a comment violates our rules, click the "Report Violation" link below the comment.

Undiagnosed ADD

How does one really know if they have ADD? I ask because (1) I currently have no health insurance (2) I don’t think my family doctor is qualified to diagnose me and (3) If I was diagnosed with ADD what would happen?

My 16-year-old (the one in the wheelchair with cerebral palsy, developmental delay and a past stroke and seizures) amazes me when he does several things at once. He’ll be watching a YouTube video, playing a Playstation game and listening to his iPod, all at the same time and knows exactly what’s going on with each.

Then I catch myself doing almost the same thing. Like now. I’m searching the Internet (reading about J.D. Salinger), watching a movie on Netflix (via my computer) and writing this at the same time. So, does that mean I have ADD? Or, does it mean that I get bored easily? And is getting bored easily a sign of ADD?

Does this mean my son has ADD? Or, is he just taking advantage of all the things he can do, while in a wheelchair? Maybe he’s just…ambitious.

 

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Virginia’s 7th Annual Early Childhood Conference

Shining Stars 2010

Charting the Future for Today’s Children

Virginia’s 7th Annual Early Childhood Conference

 

 

 

 

 

You are invited to submit a proposal to present a session at Virginia’s early childhood conference, Shining Stars 2010, which will be held in Virginia Beach July 14th – 16th. This year, we are asking that all proposals be submitted electronically.

 

To do this, you must use Adobe Acrobat or Adobe Reader. If you do not have either of these programs on your computer, Adobe Reader can be downloaded for free by clicking on http://www.adobe.com/go/reader.

 

You can access the Call For Proposals form on TTAC Online at http://www.ttaconline.org/staff/s_events/s_event_detail.asp?cid=1674. Click on your region and you will be taken to the description and link to the form on the Events page.

 

Click on the highlighted Call For Proposals. You will be asked to download the form to your computer. Once you have done this, click the X in the top right hand corner to close the screen. You may then open the form and fill in the highlighted areas.

 

When you have completed the form, click Submit (in the top right corner of page 1) to send your proposal to the Review Committee for consideration.

 

If you have any questions related to submission of forms, contact Dionne Paul-Wiggins at dpaulwig@gmu.edu or at 703-993-4496.

 

For questions related to proposal content, please contact Phyllis Mondak at Phyllis.Mondak@doe.virginia.gov.

 

We look forward to seeing you at Shining Stars 2010: Charting the Future for Today’s Children in Virginia Beach!

 

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